Patient and Family Engagement in Research

Patient and family engagement in research fosters a collaborative approach, integrating their insights and priorities into the research process. Strategies for involvement include co-designing research questions, participating in study design, and offering feedback on results. The benefits of patient-centered research include increased relevance of findings, improved study recruitment, and enhanced patient trust. However, challenges such as managing diverse perspectives and ensuring meaningful involvement must be addressed. Successful models, like the Patient-Centered Outcomes Research Institute (PCORI), demonstrate effective engagement by including patients in research advisory boards and prioritizing research topics that align with patient needs and preferences.

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